[Image: 6-piece blue colored background with a Siamese cat.Text reads: “All you people who can manage to lead productive lives - Please, oh please teach me your secrets.”]
I’m finally at a point where I could, realistically, get back into the swing of things, but the depression and anxiety is worse than ever. It’s like I get the choice between a sick body and stable mind, or a stable body and a sick mind.
I know from trying that if I try to be productive it will backlash on both my mental and physical health and make me way worse :/
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Gp’s Blood tests keep showing nothing serious.Start worrying that your pain is imaginary.”]
even when you know you have an illness that causes pain you still think it is imaginary if there is no outward evidence of severity >:
[Image: 6-piece blue colored background with a Siamese cat.Text reads: Go to zoo for 3 hours. Spend 3 days recovering.]
Between the EDS and my fibro I’m going to be pretty much bed ridden for the next 3 days. I love the zoo but I can’t handle it. Which makes me sad because I love sketching the animals.
Disproportional backlash is so not fair. I always pay for even tiny things like minor trips to the store and not very strenuous chores. :/
[Image: 6-piece blue colored background with a Siamese cat. Text on top reads: “Intake form says: ‘describe your overall health’” “You laugh uncontrollably”]
After I was done laughing I didn’t know what to honestly fill in to boot!
NOT ENOUGH LINES FORM, NOT ENOUGH LINES.
[Image: 6-piece blue colored background with a Siamese cat. Text reads: TALK TO GP AFTER SPECIALIST VISIT. “THEY DIDN’T MENTION ANY OF THAT IN THEIR LETTER”]
I’m seeing 6+ different healthcare professionals on a regular basis and they’re all terrible at informing the others what is going on with my treatment. And yet they’re always sending each other big long letters. It’s like they just write to each other about the weather and what’s in fashion this season or something. I’ve had to start taking a journal into all my appointments so I can take notes as I go otherwise I get too confused and stressed out by it all. And that’s on top of generally stressing about my health and, you know, actually being chronically ill.
They don’t send anything for me either. I have to request my medical records, wait weeks to get them, photocopy them all and bring them to the next appointment. :/
I should be being paid as a fucking secretary for all the hours work it requires .
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Chance of EM flare or chance or Chilblains. Which one will you choose”]
Thanks to my sensitivity to both cool and hot weather, either way my extremedies are going to react. It’s either an Erythromelalgia flare or my hands + feet will get cold so quickly even without a cooling device of any kind that chilblains are just begging to mess them up.
The most obnoxious question ever
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Symptoms usually begin in early adulthood” …Symptoms since age five.”]
My mom gets AARP etc. mail with my illnesses listed on the… Most of my shit wrong doesn’t usually have serious symptoms pop up until around age 50 :/
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “So, what do you do?” Please god anything but this question]
I know people are just trying to get to know you, which is why it’s so hard to dodge this extremely simple conversation starter. But being asked “Where do you work?” or “Where do you go to school?” when you can’t do either leaves you kind of stumbling for an answer, especially if your illness(es) are completely invisible. It’s so hard to explain and really kind of a mood killer, plus who wants to share their health information with a stranger, even a friendly one? Of course, that could just be the “oh my god they’re judging me” anxiety acting up every time I hear it…
I kind of just
Don’t talk to people anymore for this reason. I don’t really have anything to add to a conversation without depressing crap leaking from my mouth.
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “Someone asks you how you are feeling / Then yells at you for being honest “]
I feel like shit. Sorry if that bothers you.
ifyouveeverbeeinlove.tumblr.com
I like it when people who get mad at you for “being depressing” wonder why you don’t talk to them much anymore…
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Have Tourette’s, Have to repeatedly explain why you don’t swear”]
So I have Tourette’s Syndrome, but I’m one of the lucky ones. I don’t swear, and I don’t do anything obscene. I am on prescription painkillers for the damage my tics can do to me, and my wrists often end up in bandage because of my condition. I also sit just on the fence of OCD and ADD, two common co-morbids of Tourette’s. So of course, I get no actual treatment for any of it.
I get told, almost every time I tell someone that I have Tourette’s, that I don’t. Because I don’t swear.
I am the 90%, that don’t swear.
This is one of the most blatant example of why stereotypes of disability can fuck people over because most people seriously do not know this. I thought that it made you swear for YEARS before I came across a frustrated vent post saying most people with Tourette’s have a vocal tic that you wouldn’t even think of as the same thing.
Spreading misinformation is often worse than none at all, I’d rather have someone google my illnesses and learn about them via webMD or even wikipedia than have them learn them from jokes on late night tv.
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “Start new medicine” Bottom line: “Everyone assumes you’re cured.]
Started on Effexor after years of untreated depression and anxiety. Everyone thought that all the problems it had caused me were magically completely gone and didn’t understand why I still had problems being motivated or still have problems going out in public and calling people. It’s not an overnight thing. It was the first medicine I tried, too, so there is no guarantee it’d work at all.
>Be on new anti-depressants a week
>”Why are you still depressed?”
>wat
Even if the pills had worked (which they didn’t) they take a hell of a lot longer than a week to start to make a noticeable difference and are not a magic fix. We do not live in a cartoon, sadly.
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “Your appointment is in six months time (May)” “Wait! We have a cancellation, can you come next week? (March)” “Just kidding LOL! We cancelled your cancellation and gave your original appointment to someone else. Your appointment is now in September”]
Just a procedure that will improve my (also chronically ill) partner’s quality of life. There is a six month waiting list and it has to be done at a specialist centre that is over 120 miles away.
Naturally she was overjoyed last week when the cancellation came through, and we both took a day off work and adjusted our holiday plans for this weekend so that I could drive her.
Appointment is at 2PM, they call at 11AM to cancel. We were already on the road! They can’t even give her back her original appointment date, so they just shoved her to the back of the waiting list.
Oh well! What’s another 7 months when it’s taken over 10 years to get a diagnosis and referral.
Yeahhh. This happened to me. I said “fuck you” and found a different doctor. If they are treating me like that for appointments, then I don’t trust them to treat me like a person worthy of respect for the actual health care.
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “”Well, if you’re tired why don’t you sleep?” Would never be awake.”]
I’ve gotten this increasingly more, where I’ll make some thoughtless little comment about being tired, or I’ll complain or say something about being tired, and people will be like, “Go to bed then!” And will proceed to shout at me in all caps to go to bed over and over again until I go ‘invisible’ so they think I’ve left whenever I say anything because apparently being awake when I’m tired isn’t good for my health or something?
I don’t think they understand that I am literally always tired. I am tired when I wake up, and I’m tired when I go to sleep, and I’m tired the entire time between those two times. If I slept whenever I was tired, I would never be awake. Might as well be comatose.
For some reason also, people cannot understand “sleepy” and “tired” are not always the same thing. I am “tired” pretty consistently but rarely “sleepy” :/
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “Oh, luckily that’s easy to treat! / React to every medicine prescribed.”]
I’ve been having unexplained headaches for two years now. After going through a doctor who was completely nuts, I finally found someone who seems to know what I have. The diagnosis is chronic tension headaches [go to sleep with headache, wake up with headache; they never go away].. and the treatment should’ve been simple.. First medicine he prescribed was a muscle relaxer that didn’t cause drowsiness.. and I had an allergic reaction and almost had to go to the hospital. Next medicine I took worked for a day or two before it started giving me heart problems. Now they’re starting me on physical therapy and high-strength anti-inflammatories.
I just want the damn headaches to go away. Is that too much to ask? Good god.
I think medication sensitivity is what is fucking me over the most.
[Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: Top: “Go to several doctors in the span of a couple weeks, they all find nothing” Bottom: “They ran the exact same tests that had nothing to do with what was wrong”]
I get really dizzy when I sit up, stand up, bend over, and other things like that. This can and has made me black out and sometimes even almost faint, and most of the time it makes me fall down unless I hold onto something and wait for a few seconds. I started going to the doctors because of this, and explained that it feels like my heart beats harder when this happens. All of them ran the base blood tests (ex. blood sugar levels) with some thyroid tests because of my family history, and found nothing. It took one realizing that I mentioned my heart beating harder (and he then verified that it was happening) to think that maybe I should see a cardiologist. I haven’t been able to call in the appointment yet though. :/
No matter what kind of doctor I go to it always seems this is all they do, more blood tests, usually repeats of thyroid ones. “You want to be tested for x? no lets rule other things out by doing these blood tests again”…
